“Because of FEIBA prophylactic treatment, my Timmy can live his life with so much less worry about bleeds.”
“Timmy is 150% boy. He seems to have boundless energy, running around every chance he gets.”
I try to be an advocate for the newer members.”
“Timmy went to hemophilia camp for the first time last year, and he was in love with it. It was amazing for him to be able to go out and play with no worries about other kids being too rough—everyone there knows what he’s going through.”
“One of the most significant things I have learned from having a child with a chronic illness is that not every setback is an unmanageable tragedy.”
I have learned not to “sweat the small stuff.” There is just so much going on in everyday life that any other problems, like drama at work, won’t even faze me anymore. Nothing is as challenging as what my loved ones and I have gone through.
Not all activities are appropriate for all people. Be sure to consult your physician or treatment center before beginning any exercise program or participating in sporting activities. If an injury occurs, contact your physician or treatment center immediately for the appropriate treatment.
You should be trained on how to do infusions by your hemophilia treatment center or your healthcare provider.
Using prophylaxis with FEIBA for his treatment routine helped Timmy lower his bleeds.
Discover what it means to find your True Identity. Get involved in
meetings, and get inspired by patients and caregivers who share their
stories of managing bleeds.
Want to find other types of support? Check out our Tools & Resources section.